Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) or Reed’s Syndrome is one of several rare familial syndromes involving kidney cancer.

The key symptoms of which only some MAY occur are (i) Cutaneous Piloleiomyomas (Skin Lumps) (ii) Uterine Leiomyomas (Fibroids) (iii) Papillary Type 2 or Collecting Duct Renal Cell Carcinoma (RCC is Kidney Cancer). Please refer to our “QUICK FACTS” )  for a quick overview and then study our Handbook for more detailed information.

We have formed the worldwide HLRCC Family Alliance (HLRCCFA), a family support organization similar to the VHL Alliance.  We are indebted to the VHLA at for its guidance and in supporting us with their infrastructure. If you are interested in connecting with other families affected by HLRCC, please go to our Support Message Boards.  We all have a common interest in helping and supporting each other.

We also help and support HLRCC families with a child with Fumarase Deficiency (or fumaric aciduria).

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Copyright © 2004 - 2015 Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC)Family Alliance
c/o VHL Alliance, 2001 Beacon Street, Suite 208, Boston, MA 02135-7787
+1-617-277-5667 ext. 709 or +1-800-767-4845, ext. 709

Last modified: January 02 2015 16:52:18.